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Understanding Autism

What is Autism?

Autism –known in medical contexts as Autism Spectrum Disorder (ASD) – is a neurodevelopmental condition relating to brain development that can affect communication, social interaction, sensory processing, and behavior.

In other words, autism is something a person is born with that can affect how they understand things, communicate, learn, and feel. 

Key Points

Addressing Misconceptions, Myths, and Misinformation about Autism

News and Events

Previous Events

Understanding Autism: Together in Experience and Advocacy

Wednesday, November 19, 2025

Recent public statements by federal sources and “influencer” culture have contributed to confusion and fear around vaccines, and Tylenol use during pregnancy. Local experts and advocates, guided by BTPM Disabilities Beat Reporter Emyle Watkins, explored the evidence about claims linking Tylenol and vaccines to autism, and how such claims may undermine health professional and advocacy efforts. Whether you're a parent, healthcare provider, educator or interested member of the public, you will find tools to navigate these complex health narratives and support informed decision-making.

Autism Resources

Local Programs & Resources

Aspire of WNY provides services and support to persons who are challenged physically and cognitively as a result of traumatic brain injuries, strokes, hearing and visual impairments, neurodevelopmental conditions, as well as other conditions.

Autism Resources | The Pulse

Autism Society WNY Resources Page. The Autism Society Western New York creates connections to improve the lives of individuals and families affected by Autism in the WNY area.

Buffalo & Erie County Public Library Disability Resources

Buffalo & Erie County Public Library Neurodiversity Resources

Developmental Disabilities Alliance of WNY (DAWNY) is a collaborative group of member voluntary agencies that provide services to people with developmental disabilities. Find links to member sites, and up-to-date events calendar. Includes a downloadable, printable guide to area services.

The Early Intervention (EI) Program is a voluntary program for families with a child who has a disability or developmental delay and is under 3 years old. The EI Program monitors, evaluates, and provides many services for the child and the family. There is no cost to families for any of these services.  

Neurodiversity Network of Western New York (NNWNY) provides community education opportunities, community outreach and events, and support groups for Neurodivergent individuals and their families.

Parent Network of WNY is a not-for-profit agency that provides education and resources for families of individuals with special needs (birth through adulthood) and for professionals.

The Robert Warner Center for Developmental Pediatrics and Rehabilitation at John R. Oishei Children's Hospital has been providing comprehensive diagnostic, evaluative and therapeutic services to children in Western New York and surrounding areas with known or suspected disabilities since 1956.

The Summit Center. The Summit Center is Western New York’s leading provider of evidence-based programs for individuals with developmental, social, and behavioral challenges.

WBFO Disabilities Beat | Buffalo Toronto Public Media

Resources for Families

Autism Research Institute – Parenting Resources. The Autism Research Institute offers webinars, articles, and advice for parents of children with autism.

Autistic Self Advocacy Network – Start Here: A Guide for Parents of Autistic Kids. This easy-to-read guide from ASAN helps families learn about autism from an autistic perspective.

Child Mind Institute – Parents Guide to Autism. The Child Mind Institute offers a comprehensive guide for parents. It covers what autism is, how it’s diagnosed, and how to support children with autism, communication strategies, and managing sensory sensitivities.

Early Intervention Program | Erie County Dept of Health

Let's Play! A Printable Guide (PDF) on Comprehensive, Evidenced-Based Program for Parents of Infants and Toddlers Diagnosed With Autism Spectrum Disorder 

My Brother Rocks The Spectrum Foundation is a non-profit organization that helps families receive the funding they need to participate in social skills, classes, private therapies and occupational therapy with specialized, sensory swings and equipment.

We're Not Broken: Changing the Autism Conversation, a book by Eric Garcia meant to be a message from autistic people to their parents, friends, teachers, coworkers and doctors showing what life is like on the spectrum.

WNY Resource List - Parent Network of WNY

Inclusive Language Resources

Inclusive language means using words that respect each person’s identity, dignity, and preferences—especially for people from diverse or marginalized communities. In autism conversations, some prefer identity-first language (“autistic person”), while others prefer person-first (“person with autism”). Terms like “high-functioning” or “superpower” can feel positive to some but limiting to others. 

Because language preferences vary, it’s important to be thoughtful and flexible in how we communicate.

More Programs & Resources

Autism Self-Advocacy Network

Autism Research Institute

Resource Library - National Autism Center at May Institute

Neurodiversity Resources & Digital Library | All Brains Are Awesome

Special Ed Curriculum, Visual Supports & More: National Autism Resources

Autism | NY State Department of Health

Autism | New York State Education Department

Tools and Resources for Pediatricians (AAP)

Data Dashboards and Reports

Office for People With Developmental Disabilities (OPWDD) – Data Portal. Provides data on people with developmental disabilities (including autism) who receive services in NYS.

New York State Education Department – Special Education Data. Offers annual data on students with disabilities, including autism, receiving special education services in NYS public schools.

New York State Open Data Health Portal. Explore health-related datasets, including disability and early intervention data, with tools to filter by county or region.

National Autism Data Center – Autism by the Numbers Dashboard. Interactive dashboard showing autism service data across the U.S., including demographics, service access, and trends.

Autism Research Institute – Prevalence Summary. Summarizes the latest U.S. autism prevalence data (1 in 31 children as of 2022) and trends over time.

Autistic Self Advocacy Network – Diagnosis Trends Statement. Explains the rise in autism diagnoses and emphasizes the role of improved access and awareness.

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